Kathi’s diagnosis of Myasthenia Gravis was a life-changing event, as she said in her interview on the TV set of “Behind The Mystery: Myasthenia Gravis”.

On the TV show, we heard about her lived experiences navigating the complexities of life with a rare disease, and her story of acceptance living with myasthenia gravis. 

What really resonated with me was how Kathi talked about how to keep reaching out for support, and how being a co-leader of a patient support group had given her a lot of purpose to help others.

The urgency to advance care and deepen support for people living with myasthenia gravis grows greater every year, and MG Awareness Month is the time to really to drive that momentum. More than 70,000 people are diagnosed with myasthenia gravis in the United States alone.¹

UCB is unwavering in its commitment to supporting people living with this rare, chronic autoimmune, neuromuscular disease that causes weakness in the voluntary muscles. Voluntary muscles include muscles that connect to a person’s bones, muscles in the face, throat, and diaphragm.² 

Inspired by patients, we are driven to deliver long-lasting value to people living with rare diseases, acting with focus and care. Listening and learning from the lived experiences of patients such as Kathi, and seeing how they fit within the wider ecosystem of care and support is what delivers value.

Watch the show now: https://thebalancingact.com/behind-the-mystery-of-myasthenia-gravis

The views and statements contained in the video reflect the speaker’s opinion, experience, or professional/clinical experience.  These views do not necessarily reflect the opinions of UCB.  This video is sponsored by UCB for educational and informational purposes. The healthcare professionals are paid consultants of UCB, Inc. 

References:

1. https://myasthenia.org/MG-Education/What-is-Myasthenia-Gravis
2. https://www.ninds.nih.gov/health-information/disorders/myasthenia-gravis

The content of this article is intended for a U.S. audience only.
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