When UCB decided to bring our expertise to the rare disease space, we knew we were going to approach rare disease differently. Within the UCB Rare Disease Portfolio, we now have two FDA-approved targeted therapies, with two different mechanisms of action and two modes of administration, to help address the individual needs of adult patients living with generalized myasthenia gravis (gMG). With a patient-first, patient-focused strategy, we are also poised to address the considerations and challenges of rare disease patients through UCB initiatives.

In an effort to support rare disease patients, we are excited to host an Experience Room at this year’s MGFA Patient Conference in Phoenix, AZ, March 30 – April 1, 2025. We’re proud to show our commitment to supporting patients by providing a space where attendees can gain insights into the role that physical activity and nutrition play in managing the symptoms of myasthenia gravis.

This interactive space will offer participants the opportunity to meet and network with other patients and caregivers. An experienced physical therapist will demonstrate at-home exercises, and a registered dietician will host a healthy eating presentation. Our intent is for attendees to learn and practice strategies that can be incorporated into their daily routines. Check out some of our recipes developed for people living with gMG HERE. We hope to see you at the MGFA Patient Conference this year!  

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