February is Black History Month, a time to recognize the accomplishments and resilience of the Black community. At UCB, we are dedicated to addressing the stigma and misconceptions surrounding epilepsy, particularly among historically underserved populations. Unfortunately, many in the United States, especially those living with epilepsy, experience limited access to care and greater challenges.

Epilepsy and Health Disparities in the U.S.

According to the Epilepsy Foundation, over 575,000 African Americans live with active epilepsy. Many face significant barriers to receiving appropriate care. Increasing awareness of epilepsy within multicultural communities is vital to promoting inclusion, improving lives, and reducing stigma. Studies show that people from this community are more likely to die from epilepsy compared to other ethnic groups and are less likely to see a neurologist. In fact, they are nearly 30% less likely to visit an outpatient neurologist than their non-Black counterparts, highlighting a critical disparity in healthcare access.

Education is essential to breaking down these barriers, helping people understand that epilepsy is a chronic medical condition—not a defining characteristic—and can often be managed effectively with the right care. Connecting patients with culturally relevant resources can help close the gap in care. This includes educating families and caregivers about seizure recognition, first aid, and treatment options.

Hear from Howard

In addition to broader efforts to address these disparities, hearing directly from those affected is a powerful way to foster empathy and inspire action. Howard, a young man living with epilepsy, shares his personal experience in a video that highlights the unique challenges he has faced.

By sharing his lived experience, Howard not only educates others but also empowers those in similar situations to seek help and advocate for their health. His voice serves as an essential reminder of why awareness, education, and improved healthcare access are so crucial in addressing these disparities.